We work with a number of local and national government bodies, carers’ centres and other organisations.
We also speak at events from a family carer perspective and contribute to project advisory groups.
If we can help you bring a family carer perspective to your initiative, please get in touch.
Preparing for Adulthood (PfA)
We bring a family carer viewpoint to the PfA reference group - helping improve young people with disabilities' and parents' experiences of transition into adulthood.
Confidential Inquiry into Premature Deaths of People with Learning Disabilities (2010 - 2013) (CIPOLD)
We bring a family carer viewpoint to the overview panel for CIPOLD. CIPOLD focusses on improving quality of care and health outcomes for people with learning disabilities.
The team reviews cases of people with learning disabilities dying in care or healthcare settings. Focussing on care prior to death, it looks at contributing factors to premature or avoidable deaths.
Reviews will inform best practice in NHS and healthcare organisations.
The Standing Commission on Carers (SCOC)
Robina Mallett of the FCSS sits on the Standing Commission on Carers, a government-appointed body advising Ministers on strategic opportunities for improving carer outcomes.
SCOC oversees Carers Strategy implementation, acting as a “critical friend” to the Government and strategy deliverers, helping with policy development and responding to consultations.
Getting A Life campaign
We worked with ARC, BILD and MENCAP on the Getting a Life campaign.
Humanitarian Programmes Support (HPSCF)
From 2000 - 2007 we helped Moscow based charity HPSCF to develop broader family support services, including helplines and parent befriender training.
Dame Helen Mirren became a Patron of HPSCF in 2007.
Membership and network organisations
The UK Health and Learning Disability Network
A network providing information and support about health issues, hosted by the Foundation for People with Learning Disabilities.
ARC (Association for Real Change)
Hft is a member of ARC, a membership organisation supporting providers of services to people with a learning disability.
National Family Carer Network
Between 2004 - 2007 we set up the National Family Carer Network (NFCN), a charity bringing together groups and organisations supporting families including an adult with a learning disability. The NFCN aims to:
- Get better support for family carers
- Help people understand how to work well with family carers
- Ensure family carers have a national voice on issues affecting them
The NFCN website includes family carer news, useful resources and a regional database of family carer support organisations.
National Valuing Families Forum
We're part of the National Valuing Families Forum - a group of family carers and national family carer support organisations working to ensure the Government’s Valuing People Now agenda works for families.
Publications and projects
National Family Carer Network
We are members of the NFCN, working closely with them on developing resources such as "Using the Mental Capacity Act" and "Making sure your relative is safe" resources.
We also work with other members - for example, giving presentations about the Mental Capacity Act to Inclusion North, Inclusion East and Essex Carers Network groups.
Diversity: Supporting families from Minority Communities
With the Carers Trust (formerly the Princess Royal Trust for Carers), we developed an on-line guide about supporting family carers from Black and Minority Ethnic and newly arrived communities.
Norah Fry Research Centre
We've worked with the Norah Fry Research Centre on several projects. Projects included the Confidential Inquiry into premature deaths of people with learning disabilities, the "Help to move on” report, and “Bridging the Divide at Transition: What happens for young people with learning difficulties and their families”.
Foundation for People with Learning Disabilities (FPLD)
We’ve supported several FPLD projects, including “Community Connecting” and “Growing Older with Learning Disabilities”.
We also collaborated with FPLD to develop the resource “Using the Mental Capacity Act”, which you can find in our Resources section.
British Institute for Learning Disabilities (BILD)
We worked with BILD on ‘Working in Partnership with Families’, a ‘reader’ for staff studying for a Diploma in Health and Social Care.